Wednesday, April 14, 2010

Teaching the Terrified Tongue (Part IV)

Athelantis was born with Apert's syndrome. Amid hospital visits and operations, Barbara continued her work in children's theater. She helped organize a conference, The Hurt Child and the Arts, at Fordham University. She completed a manuscript chronicling her struggle with hospitals to find medical treatment for her son. The book, a landmark in patient rights advocacy, was published by Avon in 1972 as “Care Without Care.”

Care Without Care (Chapter I)

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